Some updates

Lessee, currently Isaac's feeding tube is out. But that's because he's thrown it up out twice. He's had some digestive issues this week. Some throwing up, some diahhrea and a nasty diaper rash.

He had his barium swallow study on friday. he still silently aspirates on thin liquids -- liquids like water, apple juice, and the like. but he did will on all the others. he doesn't seem to chew properly either. so now that the feeding tube's out, we're gonna be just feeding him thick liquids and mashed up foods.

And we'll see how that goes. His not being able to swallow liquids properly sure does make things a little challenging. But hey, that's our Isaac. :-) But we're gonna try to nourish him without the tube. Wish us luck! He seems to really enjoy the rice thickened water i've been giving him today! Until his stomach settles down, that's what i've been giving him to stay hydrated.

Well, he's currently in the midst of a 2 hour nap. how sweet is that??

Little boy

Isaac is doing well!

You can watch him get progressively stronger each day. We can feel him get progressively heavier each day. And we can hear his voice a little bit more, too. He's still pretty mute, but there's these high pitched sighing noises he can make. Hey, it's a start. He's crawling everywhere, now. Not quite as fast or as energetic. But jeez... i think he's doing fantastically.

The doctor visits have commenced. We've taken him to an osteopath and we're seeing him again later on this week to get some cranial-sacral treatments. We took him to an accupuncturist who was very good with him. She was working on his lungs and immune system and wants to see him for 14 weeks. We took him to his regular doc. Next week we'll go see the pulmonologist and have a barium swallow study done.

I think he likes his new home! Lots of trees for him to hear breezes. I've kinda forgotten how prepared a mother needs to be when she goes out with her baby. It's a little desperate when you realize you really need to change his diaper.

It sure is fun to be his mom, again!